The majority of participants rated their health status as good.Participants indicated difficulties in implementing more demanding activities; half of the participants did not have hardly any problems in meeting domestic and school assignments.Parents completed the ICQ, Quality of Life Childhood Epilepsy (QOLCE) questionnaire, and the Behavior Assessment System for Children, Second Edition.
Children were split into two groups according to surgery outcome: seizure free vs persistent seizures.
Statistical analyses were conducted to determine if children rendered seizure free showed a greater improvement in QOL compared to those with persistent seizures postoperatively.
They studied how parental coping relates to a child’s internalizing psychopathology and health-related quality of life in the context of epilepsy.
The researchers analyzed data from 40 patients (23 females) who were seen for a neuropsychologic evaluation at a tertiary pediatric care epilepsy clinic.
A simultaneous regression model found that parental helplessness and internalizing psychopathology predicted quality of life, with parental helplessness accounting for the most variance above and beyond all other variables.
Analysis of variance found that parental helplessness significantly affected QOLCE.
—The degree of helplessness that parents experience about their child’s epilepsy is significantly related to the child’s health-related quality of life, according to research presented at the 70th Annual Meeting of the American Epilepsy Society.
“This relationship highlights the importance of taking into account a parent’s ability to cope …
This raises concerns about the appropriateness of this instrument in the population studied by Mikati et al, both with regard to children in their study who had undergone surgery before the measure was established as well as possible culture-specific effects that would require construct validity testing before use of the measure in the target population.
To collect the empirical data, we used a standardized questionnaire concerning the quality of life – Quality of Life in Epilepsy for Adolescents (QOLIE-AD-48) designed for an age group of 11 – 18 years. For statistical analyses, we used descriptive statistical methods.
The use of the assessment tools, in clinical practice, may help identify the patients' problems and limitations associated with the disease and find appropriate solutions.